Wednesday 19 January 2011

A broken spear

Since Dr Wights disappearance from the scene we've struggled to find another source to supply us with LDN.

Dr Wight did give us the web address of some online docters who could supply us but they won't do so without your usual Dr signing a form basically stating you have a genuine medical condition and would benefit. Sadly my Mum went round to my GP with this form but she never got back to us saying she'd signed it. Fortunately they accepted a letter from my OT, which she'd written at the end of last Summer just when I was starting LDN stating I had ME and had been started on LDN by my Dr W. This was a relief.

Another place we tried was a consultant at Breakspear hospital, Dr Terry something (I can't remember his last name). Breakspear said they'd be happy to prescribe LDN for me but only if they were able to see me in the flesh first. They weren't happy to just have a telephone consultation, nor could they do a home visit as they're based in the north of England. It'd be difficult for me to travel there

We briefly discussed as a family asking their advice on what might benefit me and what specialists to go see. Apparently they cost an arm and a leg to pay to be a patiencent there though, someone on FF said they knew people who'd ended up selling their house to pay their expenses.

I hate England. All people do here is make a mountain out of what could be less than a molehill. As soon as I'm a proper adult and finished my degree ( and Barney and Jeremy/Herbert have safely passed away) I'm going to emigrate to Canada. They treat ME like any other illness there

One good piece of news to round things off. Dr Sarah Myhill has sucessfully appealed against her suspension and is now working again and taking on new clients. So if Dr Wight doesn't restart his clinic I could always go under her and she'd give me LDN!    

2 comments:

  1. I am in a similar situation. I phoned Dicksons pharmacy and on their recommendation signed up with e-med.co.uk

    This way I can carry on with my LDN, but overall I am concerned about progressing and trying new things for the ME because they are not experienced in this field.

    They are a source of LDN prescriptions but nothing else for us by all accounts.

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  2. Your right, they're not geared for giving advice. I'm not sure what I feel about Dr Wight vanishing. In a way I prefer coping alone, I've always been pretty in tune with my body and been able to sense what and when I can do a bit more. I'm more dissapointed about not being able to have any more tests which is odd because I got incredibly upset at the first one!

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