Wednesday 15 September 2010

Dr Wight

It would take a very long time to explain every detail of the journey
which led me to becomeing one of Dr Wights patients so I shall
probably explain more as we go along. I'll just say for now that we
first heard of him when he was reccomended to us by a man who goes to
Dads Yoga Nidra class. We pressuried my Dad into going, in spite of
his aversion to anything vaugely 'hippyish', to try and releive his
stress. As it turns out its just as well we did or we'd never have
heard about Dr Wight. The man who reccomended him actually suffers
from lyme disease, not ME, but he'd been misdiagnosed with ME to start
with which is how he ended up at Dr Wights clinic.
He first tested me for Mitochondria disorders because, though ME is
generally regarded by enlightend clinicians as a neroulogical
disorder, many ME sufferers have Mitochondria problems and all forms
of treatment will prove pointless if your Mitochondria isn't working
properly.
I'v suffered from many, varied neroulogical symptoms over the years
ranging from cocentration and memory problems, hypersensitivity and
IBS to name but a few. However as I haven't got anything wrong with my
actual Mitichondria cells (apart from this glycolic acid which ison my
translocating proteins, not affecting the cell itself) the other
likely cause of my neroulogical symptoms is a persistent virus.
Probably an Enterovirus (virus of the gut). I haven't actually been
tested for any Enteroviruses as it would involve a stomach biopsy and
Dr Wight didn't want to do one of those on me. It was a virus which
gave me a very high temperature and made me so sick I couldn't keep
even water down (symptoms suggestive of a virus of the gut) that
seemed to cause my ME, 10 years ago, though.
To help fight a potential persistent virus Dr Wight has given me low
dose Naltrexone to take. I'v been taking a 1ml dose for a week now. I
haven't experienced the miracle cure I half dreamed of yet, actually
all I'v really had are a few side affects (headache, sore throat), but
nothing too bad. Overall, along with my new diet, sleep meds and
infra-red, I'm feeling brighter and optimistic

Wednesday 1 September 2010

Fwd: Infra-red sleeping bags and lots of lettuce

For those who are wondering what a infra-red sauna is and how it
works, the answer is I have no idea how it works. I'm only familiar
with infra-red as a tool for filming cuddly penquin colonys and cute
lion prides at night. I'v read one testimonial of a CFS sufferer who
had a toxin, Nitrosamine, blocking his mitochondria cells and he had a
60-70% reduction of the toxin after 6
months of using so I'm hopeful it'll wash it out.

A description of use;
 I'v now had my infra-red coccoon for about a fortnight. Its like a
silver sleeping bag which covers you up to your neck. You have to heat
it up for 15 mins before using, and then snuggle down up to your neck.
I'v only used it 3 times for 2 mins each as I'm vy sensitive to it.
The first time I used it I nearly fell asleep whilest using it and
afterwards had a raging headache. Then I had a break of nearly a week
during which time I had a terrible tummy upset. The rolling around,
screaming in agony kind.The second time was much the same though not as
severe. The third time I
scarcely had a headache at all but instead had a curious pulsing
sensation of blood surging through my neck and head. I staggered out
of it after 2 minutes feeling vy weak as if I'd been doing strenuous
exercise. Apparently the infra-red does have a similar effect as a
workout. I always have to have a long lie down after using for over an
hour but they
reccomend this for users anyway, even for people without my ME related
problems with exercise. Its also crucial to drink 80ml for every 15
mins in the coccoon.

The support service offers advice on fitness and diet as well as using
the cocoon. They've recommended I go on a guinea pig diet of living
lettuce and sprouts and not so many carbs. Well, I guess, it makes the
Flintstones skip with excitment, why not me? The theory behind it is
that we eat more carbohydrates than we need, even that we're told to,
which makes our bodys too acid. We need to be more alkaline. This
could result in lack of energy as well as other problems like IBS