Tuesday 31 August 2010

Tuesday morning

Feeling guilty. My family (Mum, Dad, older brother) have only been
back from their holidays for one night and already I'm getting ratty
with them.
Mum has a bad back so is staggering round, clutching her back like
shes 90, and as a result Dad is even more stressed than usual. He came
barging in whilest I was resting to say Mum is just about ok to shower
me and will be in, in a min when he knows I always have a rest at 9'o
clock so I ended up snapping at him

Saturday 28 August 2010

shampoo

I've recently been diagnosed with glycolic acid ( from shampoo/hair products) on the translocating protiens of my mitochondria cells. This is very unusual; My new Dr who is an ME expert, miles away, and has tested many people had never seen it before. I thought it was a bit unfair; I only wash my hair twice a week, never use fake tan and rarely wear make up and I get to have this unusual weakness when the rest of my peers are smothering themselves with no side affects!

Stranger still I wouldn't have said fatuige was a major part of my CFS, I'd always scoffed at the idea of CFS being something to do with the mitochondria; I thought it must be something much more complicated. I'v relapsed since last Summer, not back to what I was like before that fortunately, but it affected my sleep badly. I got insommnia which then had an affect on my energy and concentration levels, I suffered from dizziness, headaches, lack of appetite, weakness and mild light and sound hypersensitivity. I wear ski sunglasses my Grandma kindly gave me all the time now and often have to have the voloume on my iPod dock right down

Basically what it means though is this is stopping me from tranferring energy round my body properly and fortunately there is a treatment that can help. Dr Wight got back in touch with the lab that did the tests as he'd never seen it before and they told him that infra-red saunas often helped people with such complaints.

So Mum got online. The 1st company she looked at were selling proper saunas and she got very excited at the thought of getting a double persons one and having sauna parties. But just as I was wondering how to put her off, she found another company selling cocoons (above link). Apart from the advantage that a cocoon would take up less space, this company also offered a support service so you could pay for advice