Burst our bubble campaign

        www.investinme.org/IiME%20ME%20Awareness%20Burst%20Our%20Bubble.htm

Invest in ME are running a campaign this month (ME awareness month) called 'Burst our bubble'. The inspiration stems from the idea that ME sufferers live in a bubble. For more info see link

Goings on at number 6 Plummer Close

Since starting the LDN again I've begun to recover from my latest nausea-initated relapse. Afterwards I'd felt shattered, dizzy and full of fog; dry, flemghy mouth; unable to speak; hypersensitive to light and sound; headachy; and I even had some leg muscle pain which I haven't for years! Though it wasn't that bad and could have been due to cramp. Since the LDN though my dizziness, fog, tiredness and headache have improved. I've managed a little blogging, foruming and sewing, spoken a few words and sat in the garden.

I've lost a lot of weight and am struggling to put it back on again due to tiredness and my stomach has shrunk so I become full quickly. Its a struggle to eat even a normal amount to stay alive. Apparently if I continue the way I am my body will start turning my muscle into energy instead. So its important I maxamise every mouthful I take calorie-wise.

I've got to drink fortisips which are utterly revolting.




I've also been consuming a lot of stinging nettles!! I was advised to do so by a herbalist whom my Mum met at a workshop. (I intended to go, but was too ill, so my Mum went in my stead.) I have nettle and apple juice tonic for breakfast and nettle soup for tea. They're rich in many vits and minerals including A + C, potassium, iron, and calcium

Twas' a long road and a hard one

Nausea has dominated my ME. In fact its how it seemed to be triggered.I had a mysterious enterovirus when I was 8. It was never properly investigated, so I don't know exactly what kind it was, but it made me
very ill - extraodinarily high temperture, intense nausea, vomiting on everything

For most of my ME nausea and IBS have been my two main symptoms. First I had chronic constipation, then constant diarrea which only stopped when I started taking bio-acidophilus forte (friendly bacteria
tablets). I've suffered nausea so intense I've had to be on a drip to prevent dehydration. It has improved of late but I still suffer when I'm 'done in'; for instance when we went to Centre Parks. I've been talking about it on Foggy friends and several members have complained its their most delibitating symptom

"It is horrible and very debilitating" Beauty
"I don't often suffer with nausea but my daughter (10) does. It's so frustrating because she will miss what little school she does because of it. She eats little and often and has some medication but often nothing seems to help" cookie
"Vomiting is horrible because it is so utterly exhausting" Lizbeth